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Related links and other information

Here are some links related to research on kidney disease, the KDQOL mission and projects, and our sponsors:

All Kidney News - an overview of available peer reviewed information on kidney disease.


assisTek  touchscreen technology for administering the KDQOL in clinical trials.

DaVita, Inc. - provider of dialysis services and support.   Helping people with chronic kidney disease lead productive, fulfilling lives with dignity.

DOPPS - The Dialysis Outcomes & Practice Patterns Study

The DOPPS Report

DOPPS Practice Monitor

End-stage Renal Disease: Patient Satisfaction

International Society for Quality of Life Research

Kidney MD  - An educational site dedicated to keep you informed of kidney disease issues.

MAPI Institute - Questionnaires and translations, etc...

MAPI Research Trust - Patient Reported Outcomes and Pharmaco-Epidemiology.

National Centre for Health Outcomes Development (NCHOD)
Devoted to patient-assessed health instruments.
Includes a bibliographic resource comprising over 6000 abstracts relating to published reports of instrument evaluations.

National Kidney Foundation (NKF)

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

National Quality Forum - National Voluntary Consensus Standards for End Stage Renal Disease Care  
This project seeks to achieve voluntary consensus on a set of performance measures that can be used to assess the quality of end stage renal disease (ESRD) care in the United States.

Nephrology Social Work Archive
A collaborative archive for renal social work professionals, Nephrology Social Work Archive makes available many documents and links useful to practitioners of Medical Social Work and other professionals.

Promoting Excellence
Information on improving health care for dying people and their families.   End-of-life care..

Proqolid: Patient-reported outcome and quality of life instruments database.
Developed by Mapi Research Institute and managed by Mapi Research Trust (Lyon, France), PROQOLID aims to identify
and describe PRO and QOL instruments to help you choose appropriate instruments and facilitate your access to them.

The Renal Network
"facilitates the achievement of optimal wellness for renal disease patients"

The United States Renal Data System (USRDS)

United Network for Organ Sharing (UNOS)