This is the original and only true source of information about
administration, scoring, and use of the Kidney Disease Quality of Life Instrument.
The long form of the
KDQOL (134 items) was developed in 1994 by the Kidney Disease Quality of Life
Working Group with support from Amgen. After release of the KDQOL Long Form,
the group began work on KDQOL short forms. This site includes information on
the KDQOL-SF 1.3 and the KDQOL-36 short forms.
Open letter to Nephrology Nursing Journal Editor, Beth Ulrich
Beth Ulrich, EdD, RN, FACHE, FAAN, Editor, Nephrology Nursing Journal: The Danquah et al. review paper on quality of life measures for patients on hemodialysis (2010, vol. 37 #3) cites Bakewell et al. (2001) as the source for the Kidney Disease Quality of Life Short-Form (KDQOL-SF). The attached article (published in 1994) is the actual source of the KDQOL instrument. In addition, our website includes extensive information about the KDOQL-SF: http://gim.med.ucla.edu/kdqol/ I am surprised that this lack of attention to detail slipped through the Nephrology Nursing Journal peer review and editoral process. For a higher quality review paper, please see:
Edgell, E. T., Coons, S. J., Carter, W. B., Kallich, J. D., Mapes, D., Damush, T. M., & Hays, R. D. (1996). A review of health-related quality of life assessment in end-stage renal disease. Clinical Therapeutics, 18(5), 887-938.
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For other sources of information about the KDQOL, please see:
The RenalNetwork, Inc at
This site was last updated on July 26, 2016 (news/announcements and registration page updated with server).