(Don't be Fooled by Google Ads - this is the Real KDQOL)
This is the original and only true source of information about
administration, scoring, and use of the Kidney Disease Quality of Life Instrument.
Due to unauthorized use of
the KDQOL by the
Medical Education Institute,
access to KDQOL
resources is now only available at:
The long form of the
KDQOL (134 items) was developed in 1994 by the Kidney Disease Quality of Life
Working Group with support from Amgen. After release of the KDQOL Long Form,
the group began work on KDQOL short forms. This site includes information on
the KDQOL-SF 1.3 and the KDQOL-36 short forms.
Open letter to Nephrology Nursing Journal Editor, Beth Ulrich
Beth Ulrich, EdD,
RN, FACHE, FAAN, Editor, Nephrology Nursing Journal: The Danquah et al. review
paper on quality of life measures for patients on hemodialysis (2010, vol. 37
#3) cites Bakewell et al. (2001) as the source for the Kidney Disease Quality of
Life Short-Form (KDQOL-SF). The attached article (published in 1994) is the
actual source of the KDQOL instrument. In addition, our website includes
extensive information about the KDOQL-SF:
am surprised that this lack of attention to detail slipped through the
Nephrology Nursing Journal peer review and editoral process. For a higher
quality review paper, please see:
Edgell, E. T., Coons, S. J., Carter, W. B., Kallich, J. D., Mapes, D., Damush,
T. M., & Hays, R. D. (1996). A review of health-related quality
of life assessment in end-stage renal disease. Clinical Therapeutics,
recently gave a presentation on Patient Reported Outcomes in Nephrology - here
is a link to it from his personal web site:
Hays, Ron D.
Patient-Reported Outcome Measures in Nephrology. Harbor-UCLA Division of
Nephrology and Hypertension - Nephrology Grand Rounds. Torrance, CA: November
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For other sources of information about the KDQOL, please see:
ProQolid at http://www.qolid.org/instruments/kidney_disease_quality_of_life_instrument_kdqol_sup_font_size_1_tm_font_sup
The Renal Network,
Inc at http://www.therenalnetwork.org/services/kdqol.php
This site was last updated on August 20, 2012.